Lessons Learned in AIDS Drug Assistance Program (ADAP) Efficiency and Program Management

By Britten Pund, Senior Manager, Health Care Access, NASTAD

ADAP Technical Assistance BriefsIn collaboration with the Health Resources and Services Administration (HRSA) and as a component of our HRSA Cooperative Agreement, NASTAD is releasing a set of videos related to AIDS Drug Assistance Program (ADAP) efficiency and program management. These videos are a companion to the ADAP Technical Assistance (TA) brief series released in winter 2012. Throughout the course of the past year, NASTAD compiled lessons learned from ADAP coordinators on a variety of topics including the use of data, implementation of cost-containment measures, challenges and successes in managing an ADAP, and advice for working within the program. The videos being released today address how to use data in ADAP to better serve clients and lessons ADAPs have learned in the process of implementing cost-containment measures in their state.

Using Data in ADAP

Lessons Learned Implementing Cost-Containment in ADAP

These videos contain personal stories and sage advice from ADAP coordinators who have first-hand experience on the topics being presented. The videos represent a glimpse inside the complex world of ADAP through the lens of individuals who strive every day to ensure those needing services can continue to access them. NASTAD would like to thank Jeff Maras (Illinois), Holly Hanson (Iowa), Annette Rockwell (Massachusetts), Chris Hanson (Michigan), John Furnari (North Carolina), Noreen O’Donnell (South Carolina), Dwayne Haught (Texas), and Jay Adams (West Virginia) for their time and contributions to this project.
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Since ADAPs were incorporated into the Ryan White CARE Act (now, Ryan White Program) in 1990, they have provided a continued source of life-saving HIV treatment to low income, uninsured, and underinsured individuals living with HIV/AIDS in all 50 states, the District of Columbia, the Commonwealth of Puerto Rico, the U.S. Virgin Islands, American Samoa, the Federated States of Micronesia, Guam, the Northern Mariana Islands, the Republic of Palau, and the Republic of the Marshall Islands. Over the past 23 years, ADAPs have struggled and succeeded at meeting demand from individuals seeking medication access. The program has seen extended crisis, from 2003-2007 and 2009-2012, with the number of individuals applying for ADAP far exceeding the available funding to provide services in some states, thus resulting in the implementation of cost-containment measures, and waiting lists.

While these measures have limited access to ADAP, they have also led to the strengthening of program management and efficiencies to ensure that ADAPs are operating in the best way to provide the greatest number of individual’s access to care. Throughout the course of the program, ADAPs have used data to assess trends, conduct fiscal projections, and predict periods of shortfall. The information culled over time has provided ADAPs an opportunity to clearly document their history, and to adequately prepare for the future.
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We hope these two videos provide insight into the inner-workings of an ADAP. Please visit the NASTAD website to view other ADAP TA resources. Please feel free to leave a comment below sharing your experiences as well.

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